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Thank you! I belong to an online community of people with scleroderma and I wanted to mention that the topic of dietary interventions comes up frequently. Nearly every newly diagnosed person wants to know whether they should cut gluten out of their diet. If they are lucky, their doctor will test them for the celiac genes/antibodies (because people with a connective tissue disease are much more likely to also have other autoimmune diseases like celiac than the general population). In many cases though, the rheumatologist does not feel that this testing is warranted and simply tells the patient that diet has nothing to do with scleroderma, either as cause or treatment.Many people on this support board have shared their experiences of cutting out either wheat, all gluten, or sometimes even all grains. Many choose to follow the so-called anti-inflammatory diet which removes gluten, dairy, and sugar. In some it makes no difference at all in their symptoms, but it seems to prove helpful in the majority of people who are able to adhere to their new diet strictly for a period of time. Of course, since most of these people were never tested for celiac disease it is impossible to know WHY their symptoms improve on a gluten-free diet. Is it because they have undiagnosed celiac disease or a gluten sensitivity? Is it because grains are inherently inflammatory? Do improvements result from removing the wheat, the gluten, the grains, the dairy, or the sugar? Is it because they are de facto prevented from eating processed foods and are now better nourished because they are eating a lot more fruits and veggies, meat, fish, eggs, nuts and seeds? Is it a placebo effect (because these people are accepting an increasing amount of responsibility for their own health and feel more positive and more in control)? The improvements that people usually report are a reduction in joint and muscle pain, reduction in bloating and diarrhea, increased energy, and better sleep. I want to stress that these dietary changes are not seen by anyone with scleroderma as a cure or even a treatment for the disease, but that they are extremely helpful in controlling (or even eradicating) certain symptoms. Because there is a large area of overlap between the symptoms of celiac and scleroderma (from rashes and joint pain to diarrhea and bloating, neuropathy, malabsorption, and weight loss) it is very hard to assess what is causing what.

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Thank you! I belong to an online community of people with scleroderma and I wanted to mention that the topic of dietary interventions comes up frequently. Nearly every newly diagnosed person wants to know whether they should cut gluten out of their diet. If they are lucky, their doctor will test them for the celiac genes/antibodies (because people with a connective tissue disease are much more likely to also have other autoimmune diseases like celiac than the general population). In many cases though, the rheumatologist does not feel that this testing is warranted and simply tells the patient that diet has nothing to do with scleroderma, either as cause or treatment.Many people on this support board have shared their experiences of cutting out either wheat, all gluten, or sometimes even all grains. Many choose to follow the so-called anti-inflammatory diet which removes gluten, dairy, and sugar. In some it makes no difference at all in their symptoms, but it seems to prove helpful in the majority of people who are able to adhere to their new diet strictly for a period of time. Of course, since most of these people were never tested for celiac disease it is impossible to know WHY their symptoms improve on a gluten-free diet. Is it because they have undiagnosed celiac disease or a gluten sensitivity? Is it because grains are inherently inflammatory? Do improvements result from removing the wheat, the gluten, the grains, the dairy, or the sugar? Is it because they are de facto prevented from eating processed foods and are now better nourished because they are eating a lot more fruits and veggies, meat, fish, eggs, nuts and seeds? Is it a placebo effect (because these people are accepting an increasing amount of responsibility for their own health and feel more positive and more in control)? The improvements that people usually report are a reduction in joint and muscle pain, reduction in bloating and diarrhea, increased energy, and better sleep. I want to stress that these dietary changes are not seen by anyone with scleroderma as a cure or even a treatment for the disease, but that they are extremely helpful in controlling (or even eradicating) certain symptoms. Because there is a large area of overlap between the symptoms of celiac and scleroderma (from rashes and joint pain to diarrhea and bloating, neuropathy, malabsorption, and weight loss) it is very hard to assess what is causing what.

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I had an intestinal intolerance to wheat but never tested positive for celiac in two or more endoscopies. I wish I had taken his advice earlier. I read your book a couple of weeks ago, but even before that, I knew I had to give up gluten. I had managed to do it for almost a couple of months a no. yrs. ago and felt great; then slipped back into consuming some gluten and too much of other grains. I need to lose about 250-30 lb.After a week and a half of no gluten and reduced grains, I’m feeling better overall, sleeping better, and having less issue with constipation and hypoglycemic attacks in the morning – which I had on occasion a few hours from eating a carb-rich breakfast (I am not diabetic). I have lost about 3 lb.One concern is handling temptation outside my house. I know I will cheat occasionally on a very small scale (for example – tonight at a party!), but I am confident that I can get back on track quickly. I found dropping the wheat easy – I went cold turkey and had no withdrawal symptoms.Another concern is how to handle another routine endoscopy I’m supposed to have next year for GERD. My gastroenterologist always checks for celiac as part of that. I know you have to eat quite a bit of gluten to get a correct reaction to the small intestinal biopsy. I don’t want to do that. I guess I need to discuss this issue with him.Thanks for an excellent, well written, inspiring book!Mel

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